CARE TALKS: Caregiving the Caregiver

Honoring the True Heroes

November is National Alzheimer’s Awareness and Family Caregiver Month. It was given that designation in 1983 by President Ronald Reagan, long before anyone knew that he would die of the very disease he set out to recognize.

Click on the ore boat photo to go directly to the first part of the introductory series called CARE TALKS, a video series offering encouragement to the caregiver.

One of the hallmark symptoms of Alzheimer’s, the most common form of dementia, is the loss of decades of memories. The loss begins slowly, traversing over several years. But like a boulder starting to roll down a mountain, it picks up dramatic, breakneck speed and ultimately results in carnage for everything in its path.

It was easy to tell how many decades of memory my mom had lost based on what she could remember. When she told me her husband was picking up their daughters from school, I knew she had lost more than four decades. When she called 9-1-1 and told them to urgently send a squad car to return her to her childhood home, I recognized her loss of over five decades. When she asked the nurses where she could find the nearest bar so she and her girlfriends could go pick up boys, I knew she had lost over six decades. And it gave me a glimpse into her teenage years that I wasn’t sure I wanted to see!

My husband took the above photo of a lake freighter that emerged through fog clouds during a wedding ceremony on the north shore of Lake Superior. It’s a rare treat to see ore boats, let alone one docking within yards of where we stood. At first, we knew something was entering the small harbor. Eventually we were witness to the full splendor of the magnificent ship cutting through the fog.

We recognized the symbolic similarities between the ship in the fog and a person’s struggle with Alzheimer’s. We can’t always make out what it is in the early stages of its arrival because the fog hides it. Sometimes the fog is thick and nothing can be seen at all. Sometimes its outline becomes unmistakable during moments when the fog dissipates.

In both cases, there is innocent beauty. I like to call it collateral beauty. An ore boat is still beautiful whether or not it’s hidden in the fog. A life with Alzheimer’s is beautiful, too. Mom entrusted me with the matters of her life. She smiled when I reminded her that I handled her appointments, schedule and finances–all of the things in her life she could no longer understand. I told her I was her life manager. She replied, “Oh that’s good. I need one of those.” And then we would both smile. I loved being able to serve her and bring some peace in the storm. I loved her smile. I loved those clear moments when she said, “I love you, Cheryl.” And I loved those times when I not only held her hand, but she held my hand.

Caregivers are heroes–filled with honesty, sensitivity and integrity. They place others above themselves, are their hands and feet and unselfishly serve. And they look for those moments of collateral beauty. If you are a caregiver, THANK YOU!

Do you like to thank police officers or military personnel for their service?

I have three assignments for you during the month of November.

  • Write a short note to a caregiver (even if you are one, too) to say thanks for being a caring servant.
  • Make a short phone call just to ask, “How are you doing?” A friend and co-worker did that a lot during my years of caregiving for my mom. Dawn also asked how Mom was doing, but she asked about me first.
  • Pray for God’s grace in the caregiver’s life.

In future blogs, I’ll be telling you about some of the newest research relating to actual cures and earlier diagnostic tools. The efforts of the Alzheimer’s Association are helping in those areas. On November 4, 2017, my husband and I are walking in the Walk to End Alzheimer’s in Little Rock, Arkansas.

If you could make a donation at the link below, you will become part of my team to help find viable cures and early diagnoses. Thank you so very much!

http://act.alz.org/goto/cherylcrofootknapp

Together, we can find a cure.

 

God bless your day!

 

 

“Care Partnering: Knowing the Impact of Losing Memories–One Decade at a Time”
by Cheryl Crofoot Knapp, with Chuck Knapp

Interview with Hartley Pleshaw, WCAP-AM 980, Boston, Massachusetts
April 15, 2017

 

My mom told me a secret many years ago that gave me a new level of understanding and compassion towards her. I didn’t think I would ever tell a soul and thought I would take her dirty secret to both our graves.

But there came a turning point in her boxing match with Alzheimer’s when it became time for me to tell others. I chose to tell my sister, who never knew, and I had to tell a doctor and several nurses. Mom’s quality of care depended on me talking about her personal tragedy.

I was shocked when Mom told me. I was shocked by the violation, and I was shocked that she chose me to tell. And I sobbed as I revealed it to others during her last week of life. However, I was blessed to be the one to show her such extreme compassion when Alzheimer’s brought her back to the decade of her defilement.

Mom was my best friend, and I was probably hers. Because she had told me her darkest secret, I understood that caregiving is more than giving–it was truly being a partner with her in her care.

The secret is revealed in my book, UNDEFEATED INNOCENCE, and also during the interview in this post. Click to listen.

FIRST BIRTHDAY IN PARADISE (including excerpts from Chapter 11 of UNDEFEATED INNOCENCE)

REMINDER: Enter Contest for Chance to Win Glen Campbell's New CD ADIOS--Ends June 30, 2017

SEE JUNE 11, 2017 POST FOR CHANCE TO WIN GLEN CAMPBELL’S FAREWELL CD–Deadline is June 30, 2017–No Purchase Required

“Why am I here? I want to be dead. Today was the day I was supposed to be dead. Can you tell me why I can’t be dead?” Mom’s words spoken through the filter of mid-stage Alzheimer’s horrified me. I thought, How could our nightly phone call take such a terrifying turn? (more…)

When Alzheimer’s Bids Adieu: Glen Campbell Says Goodbye in Song

Enter Contest to Win A Free CD of His Farewell Album

 

The beloved legendary song master Glen Campbell released his farewell album entitled “Adiós” on Friday, June 9, 2017. Adiós was recorded in 2012, not long after Glen was first diagnosed with Alzheimer’s Disease. It features Willie Nelson, Roger Miller, and Vince Gill, as well as Glen’s talented daughter, Ashley.  Glen is well-known for his savory list of hits which includes Gentle on My Mind, Rhinestone Cowboy, Galveston, By the Time I Get to Phoenix, Wichita Lineman, Southern Nights, and Dreams of the Everyday Housewife. However, his farewell album features the songs he loved and never previously recorded. Glen is now in the late stages of Alzheimer’s.

What brings me to tears is that the Campbell’s family story is so similar to many of us who have loved and caregiven for family members with Alzheimer’s. It’s a vicious diseases that steals memories of the past and moments for the future. But by being a caregiver for my mom, I discovered I could parlay sadness and loss into collateral beauty—I got to live out my life with Mom for three years in extraordinary richness. I was able to return to her the compassionate commitment she gave to my life. I got to hold her like she held me—emotionally, physically, and spiritually.

READ BELOW FOR DETAILS ON HOW TO ENTER FOR CHANCES TO WIN A CD OF GLEN CAMPBELL’S FAREWELL ALBUM “ADIÓS”. (more…)

VIDEO: Leaning Away from Grief and Finding Peace in the Storm

Romans 15:13--Overflowing with Hope

Mother’s Day 2017, the first one without my sweet mama, was a day that appeared on my dread list ever since June 30, 2016. I was afraid that my emotions would be unable to cope and that collateral damage would be parlayed to my amazing adult sons. In “Cheryl-ese,” I didn’t want to short-change them. I love being their mom, ever since the days I first held each of them. They always deserve my best. But my mama can no longer hold me, and I was, well, scared. I loved, and I grieved. During mid-winter, the grief of my loss consumed me for extended moments–not days, not weeks–but the moments were painful and the world felt broken. How could I walk through the storm of Mother’s Day without the one who first held me? The attached video answers that question.

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Click on “KTHV-11” below to see the full interview.

Craig O’Neill, lead news anchor of KTHV-11 in Little Rock, Arkansas, graciously interviewed me regarding the Alzheimer’s journey of losing both my parents to the disease and publication of my new book, UNDEFEATED INNOCENCE. We discussed what it was like to lose both parents to Alzheimer’s and the necessity for passionate patience in caregiving for someone with Alzheimer’s. I spent several hours at the station with Craig and the rest of the news team, particularly Denise, Dawn, and Ed. I met producers, directors, and reporters. What touched me the most was the genuine compassion they all showed not only to me, but as they talked of others they knew who were or are caregivers, or as they shared their own painful experiences with losing loved ones to Alzheimer’s. KTHV-11’s tag line is, “This is Home.” That’s how I felt from the moment I walked in the door. Thanks, KTHV!

Alzheimer’s Disease can be a complicated, gut-wrenching journey with those we love. But if you are a caregiver looking for encouragement, it is found in God’s grace and in knowing that you do not walk this journey alone.

Buy the Book

Date: May 6, 2017
Time: 6:25-6:29 a.m.
Appearance: TV Interview: KTHV-11 with Craig O’Neill
Outlet: KTHV-11
Location: Little Rock, Arkansas
Format: Television

UNDEFEATED INNOCENCE is available at online bookstores, including Amazon, Barnes and Noble, and WestBow Press.

Caregiving With “Attitude”–What We Do For Others Matters

Philippians 2:3-4

Do nothing out of selfish ambition or vain conceit. Rather, in humility value others above yourselves, not looking to your own interests but each of you to the interests of the others. (Philippians 2:3-4)

The attached video was posted on Facebook, and I stumbled on it yesterday. Professional and non-professional caregivers truly make a difference in the lives of patients and their families when they humbly value others above themselves.  The man in the video suffered a major stroke and wasn’t expected to live or walk. I guarantee that if you watch the entire short video, you will laugh AND cry.

 

This ought to be going on in nursing homes and rehab centers around the world! To see John’s face light up in his successes says it all!! Nurses truly make a difference in patients’ lives–and for the patients’ families. (more…)